I was in the middle of a very long reply-- my own story--and it got lost. Perhaps that's my cue to write my own story about my invisible illness!
Thank you for writing this. It helped me think more about my recent lack-of-official-diagnosis of Fibryomialgia from my PCP along with a lot of health stuff that I went through at the beginning of 2020.
I relate to your story! And, am inspired to share my own sometime this month. <3
Learning to be tender with myself and realistic about what I can do has been paramount. I drove yesterday for 4 hours and knew I would hurt yesterday and today at the minimum. I did what I could to ease the pain and the reward (seeing my mom) was worth the pain of driving. But, man does it hurt!